A better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring for their mental and social — as well as physical — well-being, is necessary to guide future research, care recommendations, and policy decisions, according to a review study published in Orphanet Journal of Rare Diseases.
Among its findings was strong support for treatments that work to stabilize their disease, preventing the loss of further mobility, including control over their fingers.
