The third annual FSHD Society Walk & Roll to Cure FSHD will take place on Saturday, September 12. More than 127 teams are participating in this 1-day event to raise funds and awareness for facioscapulohumeral muscular dystrophy (FSHD).
Because of the COVID-19 pandemic, individuals will be going solo or in small, socially distanced groups and sharing their exploits over social media. A live video stream on the Society’s Facebook page will celebrate Walk & Roll teams and volunteers across the country.
This year, teams can vie for opportunities to have one-on-one live chats with Max Adler, the Glee star who is serving as National Ambassador for the FSHD Society, a media release from the FSHD Society notes.
“I watched my Mom and Grandma struggle with this disease and I don’t want that to happen to anyone, anywhere, ever again.”
— MaxAdler, who is leading his own team, Mighty Max
“While the pandemic has brought many things to a halt, FSHD is relentless. It’s a progressive disease that robs you of your smile, your ability to walk or perform simple, everyday tasks that most people take for granted. This disease stops for no one, and neither will we.”
— Beth Johnston, the Society’s chief community development officer
Fundraising Goals and Locations
This year’s Walk & Roll aims to raise a half million dollars to support the Society’s programs to accelerate the development therapies for FSHD with the goal of getting an approved treatment onto the market by 2025.
The following locations are holding events for the 2020 Walk & Roll to Cure FSHD:
- Bay Area
- Central Texas
- East Tennessee
- Greater Philadelphia
- Kansas City
- Los Angeles
- New England
- North Carolina
- Pacific Northwest
- St. Louis
- South Carolina
- Southwest Florida
To register for the FSHD Society’s 2020 National Virtual Walk & Roll, visit the team page. In addition, tune in on the FSHD Society Facebook Live telethon on September 12 to watch special appearances with Max Adler, patients and leading researchers.
[Source(s): FSHD Society, PRWeb]