Category: Muscular Dystrophy

Muscular Dystrophy

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The Beauty of Patient Autonomy

Caring for patients with physical disabilities and debilitating health conditions involves not only providing the means to help them improve their functional abilities, but also being a partner in helping them live their lives on their terms. Jean L. Minkel, PT, ATP shares her experience in this feature.

People Living with FSHD Speak to the FDA About the Disease’s QOL Effects

The FSHD Society held a landmark meeting recently in which individuals and families living with facioscapulohumeral muscular dystrophy (FSHD) told representatives from the US Food and Drug Administration (FDA) about how the muscle-wasting disease affects their health, and what they hope future treatments will do to improve their quality of life.

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